Dec 09

I’m excited!

So….

First of all, by way of an update: I had a ministry meeting on Thursday. It went really well. We have an idea of where we’re going now! Hooray! We have a little bit of a timeline, too. We’re looking to make a presentation in mid-January. If that goes well and we get approval, we’ll have another in mid- to late February. If all goes well (please pray!) everything will be official by spring of next year. Exciting…and scary…and…a really good exercise in trusting God to work out the details the way that He wants!

I have been contacted twice, in the last two weeks, by people asking prayer for families who have been walking through loss. I started keeping track of where some of our resources have been going and I was surprised. I’ve been the one doing all of the distribution, but I just didn’t pay enough attention to realize how far we’re spread out, already. That’s exciting! Also, it’s very humbling. God has allowed me to be involved in what He’s doing, and that’s no small thing.

I also wanted to let you know, in case anyone is interested, that I found some merchandise I’m excited about. I’ve been aware of   www.cafepress.com    for some time, but I was doing a little shopping around, this week, and realized something I didn’t know before.  Cafepress sells Trisomy-18 awareness merchandise! They also have merchandise with T-21 (Down syndrome) and T-13 awareness messages (some of them are super cool!). They sell t-shirts, bracelets, coffee mugs, coasters, key chains, and all kinds of other things. They have onesies (bodysuits) that say “Compatible with Life”. I LOVE IT!!!!!! Even if your family is dealing with other issues, they have all kinds of awareness merchandise. I’ll post a picture of my bracelet, when it comes in. I can’t wait!

Oct 01

October First…

Today is the beginning of the month. This means a fresh start. Or something like that. So, here we are.

We’re still working on ministry things. While on vacation, I was able to reach out to some friends. An update on Baby Vanessa (the baby girl I mentioned, earlier this summer, with Trisomy-18) : she has not had heart surgery yet, but she’s still hanging in there. She’s been home, but only for short periods of time (from what I understand). I keep thinking about her father, a guy I knew when he was in junior high, and wondering about the young man he’s become and how he’s doing with all of it. It’s a lot. I’ve been keeping him in my prayers, along with the rest of the family. Please keep them in your prayers, too.

As far as moving the ministry forward, things are moving a little slower, at this point. We’re still working on getting an advisory board together. The Lord has laid some names on my heart, but there have been some issues with timing, so we’re just waiting for Him to get things in order. I’m a little frustrated, but I want what He wants to do, so I’ll wait.

I have a lot more to say, but it’s very late, and I have to teach tomorrow, so I’ll have to post again later. For now, I’m looking forward to seeing what the Lord has in store in this new month. By His grace and for His glory!

by the way, for anyone who might be interested: when I logged on to post, the Molly Bears order form was open.

Jun 22

I’m Back!

I said I’d be back! I was tempted to call it a night and turn in, but I knew that since I said I’d post, I’d lose sleep if I didn’t. Like I said earlier…accountability. So, I’m back.

I actually have a lot to post. One of the reasons I’ve been slacking is because I know I have more than I can fit in a post, and I can’t decide what to go with. So, I just procrastinate until there’s not enough of my brain left to pick a subject and write a coherent post. (The rambling was so bad, last week, that I couldn’t even save the draft!)

Some highlights, from the past two weeks:

I finished Angie Smith’s book (I Will Carry You). Wow. That’s really all I can say. It’s amazing, as I interact (on whatever level) with other people who have been down this road, to see the ways that the Spirit of God works. I find myself reading and hearing not just ideas that I’ve had, but people actually using the same words that I’ve used. It would be unsettling, if I believed it were just coincidence. As the moving of the Holy Spirit, though, it’s a source of extreme joy and comfort for me. I know it’s not a coincidence; my God is just that big!

I’ve been spending a lot of time, over the last few weeks, working on a project that I’m SUPER excited about. I can’t share details, just yet, but I can’t WAIT to tell you all about it! I’m just waiting for the timing to be right, and there’s a lot of tweaking still going on. It’s getting close, though! (It’s a good thing; I’m getting to the point where I’m going to bust if I can’t share it soon!)

I’m still working on administrative stuff. I’ve been able to free up some time to devote solely to it, and, Lord willing, there will be some things happening with that this week. I don’t know exactly what, but I’m really excited to see how the Lord is going to move things.

I have a new prayer request for you, as well. I talked to a good friend, last night, that I haven’t been able to connect with in a while. She’s the pastor’s wife at a small church in the suburbs of a very large city, and she’s been my Paul (spiritual mentor) through a lot of things, including this horrible thing called “bereaved parenting”. She shared with me that there is a family in their church, right now, who is walking this road. Baby Vanessa has been diagnosed with Trisomy-18, the same chromosome abnormality our Zoe-girl had. She’s doing pretty well, for now, but she’s going to be having surgery to repair a heart defect. I don’t have a lot of details, but I know that prayer helps – no matter what the details are! I’ll keep you posted on what I know, but, for now, that’s really all I do. Our prayers are going up on her behalf, and our hearts are with her and her family. If you’re reading this, we’re praying for you and Vanessa! I’ve never met her, but I know she’s precious!

Since I finished Angie’s book, I did update my “Current Books” widget. I don’t know if anyone’s following it, but I am moving through things. I’m almost finished with the other book I’ve had up there, too. I’m hoping to finish it this weekend. I’m not sure what I’m going to start next; I got a few new things in the mail today, and I have an online resource that I haven’t had a chance to check out yet. I do have a draft of a resource list started, but I don’t have it ready to publish here, just yet. I’m hoping to get it up soon, though, so keep an eye out for it.

I have a lot more to tell you all, but I need to get to bed – the boys have their last t-ball game in the morning, so I need some sleep! I’m hoping to be able to post again on Sunday night, so, Lord willing, I’ll talk to you then. In the meantime, I’d really appreciate your prayers!

Until Sunday!

Apr 23

I’ve Got A Blog!

Well, I’m officially a blogger.  I never thought it would happen.  As I’ve been doing research, though, a friend suggested that I set up a place to organize my thoughts.  Doing it a little more publicly (or a LOT!) adds a level of accountability that I find helpful.  And it allows a lot more accessibility for those who are interested in what I’m doing.  Perhaps more importantly, it makes my thoughts available to people who don’t necessarily know me personally.  While I find that somewhat intimidating, I still think it’s a step I need to take.  So, here I am!

The research that I mentioned above is explained a little better in my about page, but I’ll say a little here, too.  In 2010, my husband and I had a daughter, Zoe Sophia, who was born with Trisomy-18.  She was diagnosed prenatally, which forced us to make some choices.  Whether to continue the pregnancy was never an issue; we loved her before we knew anything was wrong.  Knowing she was only going to be with us for a short time only made us love her more fiercely.  It made every day priceless, because we had no idea how many more we would have.  As a result, it because almost an obsession, for me, to make a place for her.  I wanted everyone to know that she was precious to us, and deserved as much investment as any of our other children.

Zoe’s life lasted only 7 and a half weeks.  The first two were spent in NICU.  We didn’t know, for sure, if she would ever be able to come home.  Preparing a place for her was always a step of faith, because we didn’t know if she would ever use it.  Telling our other children that “this is going to be Zoe’s room” was always bittersweet; what if she never used it?  We chose to focus, instead, on the possibility that she would.  We prepared for her cautiously, and differently (we didn’t buy her any clothes bigger than 6 month sizes…), but we prepared as purposefully as for each of other little ones.

The reason I chose to name this blog “A Place For Zoe” is because I think that life is a lot like our prep for her.  We don’t have any guarantees.  None of us knows how much time we have with the ones we love, or how much influence they’ll have on us, or vice versa.  We chose to name our daughter “Zoe” because it means “spiritual life.”  And we spent time making a place for her.  She’s gone now, but I still find myself needing to make a place for Zoe – it’s just a different kind.